Kaitlyn has a syrinx in the lower portion of her back, very close to were her tethered cord was located.
We believe that her syrinx developed while her spinal cord was tethered. It has been monitored by her neurosurgeon through MRI, since it was discovered. It has not since changed in size or located since surgery. We will continue to monitor her syrinx through her yearly MRI check ups, if she starts to display symptoms from her syrinx or it increases in size, surgery to drain it may be on the table.
You can help us pray that her syrinx drains away on its own, or that it stays the same size.
We believe that her syrinx developed while her spinal cord was tethered. It has been monitored by her neurosurgeon through MRI, since it was discovered. It has not since changed in size or located since surgery. We will continue to monitor her syrinx through her yearly MRI check ups, if she starts to display symptoms from her syrinx or it increases in size, surgery to drain it may be on the table.
You can help us pray that her syrinx drains away on its own, or that it stays the same size.